The following is reposted from the Tennessee Federation of Republican Women Facebook page.
Mawmaw goes to Nashville!!
I am here today for the Medical Marijuana Lobby.
Date: January 27, 2014
To: Lieutenant Governor Ron Ramsey
Fellow TN Republican Legislators
Re: TN Medical Marijuana Bill HB 1385
Chloe Grauer
Our Family’s Face for Medical Marijuana
I am writing to ask for your support after seeing the touching
interview this week about the personal story of Lieutenant Governor Ron
Ramsey and his grandson, Briggs. I was so moved by the deep emotion in
Ron’s voice about his personal experience as a grandparent in the face
of the unthinkable.
I saw Ron’s faith, his hope and his ability to
accept God’s will while all the time knowing he would do everything in
his power to save his grandson. However, as he admits, the situation was
out of his hands. He could not personally fix or negotiate a fix, nor
would money make it go away. Thankfully his story had a happy ending
because his family was fortunate to have access to medical treatments
that could heal his grandson.
I am a grandparent that knows
and feels those same deep emotions each and every day since October
2012. Ron and his family have found peace but my family fights everyday
to find a medical therapy to keep our Chloe alive and to ease her
suffering. Our struggle is not from a lack of faith, but one of
politics. There is a therapy that might help Chloe but we cannot have
access to it in the State of TN.
Chloe has a rare neurological
condition that causes her to have 100-200 seizures a day. When Chloe
was born we had eight glorious days of joy but then the seizures began.
She has only been alive 461 days and with a conservative estimate has
had over 45,300 seizures. There are so few words to adequately express
the helplessness we feel after watching her cluster seizures last more
than an hour to just start up again as soon as they end. We have tried
every medication cocktail available but it is not without a price, the
toll of the side affects of these medicines steal almost any hope from
us that Chloe will ever have a better quality of life.
Sadly
Chloe is not unique in the sense of being a rare medical anomaly, there
are thousands of other special needs children that live in TN that are
being denied access to the medical oil (Charlottes Web Oil) from the
marijuana plant. The medical grade CBD oil is not intoxicating, does
not produce a high and therefore has no street value. Unfortunately my
grand daughter’s life is caught up in a debate over “pot”.
I
understand what a complex issue this is as it regards to medical
marijuana but Republican Allen Peake in Macon, GA has written a bill
that will focus only on the oil in an attempt to offer compassionate
care for children like Chloe. When a parent sees a news story like the
one Dr. Sanjay Gupta did on CNN this past August it is hard not to have
hope that the Charlotte’s Web oil might help their child. With a 99.9%
success rate in reducing or eliminating most seizures in the children
featured in the documentary it makes you want to whisper ‘what if’….
Lieutenant Governor Ramsey, won’t you please extend the blessing from
the healing of Briggs to consider how your support might help your
fellow Tennesseans that find themselves at a very similar cross road as
your family? I never imagined that I would be an advocate for medical
marijuana but if you spent just one day with our sweet Chloe you would
understand why I would move Heaven and Earth to ease her pain and
suffering if I could.
Thank you for your consideration, I pray
you will support the effort of our family and all those other children
desperate for a chance to try this new medical therapy.
Sincerely,
Gail Grauer
Gail Grauer , Memphis, TN
E: gailgrauer@yahoo.com
C: 901-517-4664
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